My Son, My little man, there are thousands of children ‘like’ my son out there, each one different and individual but with certain things in common, routines, not having to deal with change, social interaction struggles and many more things which to us may seem trivial but they are not, we as parents work so hard for our children to be understood, to help them understand that they need to go and see the doctor/specialist/speech or just the every day thing like the dentist, for these children it is also best that they have the same GP or dentist.
I’m taking about children on the ASD Spectrum, our house is full of posters, calenders and other things to aid little man lead the life he knows and understands, people look at him and the usual words are ‘isn’t he cute’ 2nd meeting ‘he’s lovely’ and if your lucky you may get to see him a 3rd time and he may still be cute, but these people don’t spend the time with him and see his other side, knock on the door without his prior knowledge and expect him to tell you, your not welcome and never hever come back, want a hug and kiss? arrive on your own as the 2nd guest has no chance of it.
We as Parents spend hrs talking to him, writing things down (he can read extremely well), we make picture books with all the plans for days when going on holiday. He always visits the same GP, someone who he trusts and understands him (although he still has a ‘meltdown’ with him), once in an emergency we couldn’t do that and the one he saw, actually said she wont touch him as he may hurt her :(, we visited the eye clinic and he bite the doctor there but she was a lot more understanding, I could go on about the behaviour of our little man, he gets so frustrated and most of the time we don’t even know the triggers that set him.
OK I’ll get to the point about this post, we live 24/7 with very little sleep and very hyper little man and a very aggressive one, today I received a letter to inform us that one of the professional bodies who deal with him cant any more and we need to discuss further options, I’m angry in a way as they don’t understand the work we now have in front of us, I’m upset because as a professional I would have thought that they have been trained to deal with children and adults who require a little more patience and understanding and confused as to why after 5yrs they have decided that they cant do it any more, I will have a few answers by Wednesday but not sure if they will help on this occasion, I do understand also as it’s hard work and when it’s written down in black and white it brings it home that my child will always need that little bit more that we don’t think about everyday as we just get on with it and live our life through his world, the best we can.
We will continue to help and encourage him to live a life he can understand, we will also continue to treat like a child and when he misbehaves he will be told and an explanation given as to why he cant do that, we will also continue to help others understand him and to see things the way he does.
Thank you for reading my little rant, whilst eyes are leaking and hopefully I will feel better now, please feel free to comment.